Transmission dynamics: Data sharing in the COVID-19 era
#MMPMID32838037
Foraker RE
; Lai AM
; Kannampallil TG
; Woeltje KF
; Trolard AM
; Payne PRO
Learn Health Syst
2021[Jan]; 5
(1
): e10235
PMID32838037
show ga
PROBLEM: The current coronavirus disease 2019 (COVID-19) pandemic underscores the
need for building and sustaining public health data infrastructure to support a
rapid local, regional, national, and international response. Despite a historical
context of public health crises, data sharing agreements and transactional
standards do not uniformly exist between institutions which hamper a foundational
infrastructure to meet data sharing and integration needs for the advancement of
public health. APPROACH: There is a growing need to apply population health
knowledge with technological solutions to data transfer, integration, and
reasoning, to improve health in a broader learning health system ecosystem. To
achieve this, data must be combined from healthcare provider organizations,
public health departments, and other settings. Public health entities are in a
unique position to consume these data, however, most do not yet have the
infrastructure required to integrate data sources and apply computable knowledge
to combat this pandemic. OUTCOMES: Herein, we describe lessons learned and a
framework to address these needs, which focus on: (a) identifying and filling
technology "gaps"; (b) pursuing collaborative design of data sharing requirements
and transmission mechanisms; (c) facilitating cross-domain discussions involving
legal and research compliance; and (d) establishing or participating in
multi-institutional convening or coordinating activities. NEXT STEPS: While by no
means a comprehensive evaluation of such issues, we envision that many of our
experiences are universal. We hope those elucidated can serve as the catalyst for
a robust community-wide dialogue on what steps can and should be taken to ensure
that our regional and national health care systems can truly learn, in a rapid
manner, so as to respond to this and future emergent public health crises.
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