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2020 ; 62
(1
): 41-45
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gab.com Text
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English Wikipedia
The care of patients with Duchenne, Becker, and other muscular dystrophies in the
COVID-19 pandemic
#MMPMID32329920
Veerapandiyan A
; Wagner KR
; Apkon S
; McDonald CM
; Mathews KD
; Parsons JA
; Wong BL
; Eichinger K
; Shieh PB
; Butterfield RJ
; Rao VK
; Smith EC
; Proud CM
; Connolly AM
; Ciafaloni E
Muscle Nerve
2020[Jul]; 62
(1
): 41-45
PMID32329920
show ga
The coronavirus disease 2019 (COVID-19) pandemic has resulted in the
reorganization of health-care settings affecting clinical care delivery to
patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other
inherited muscular dystrophies. The magnitude of the impact of this public health
emergency on the care of patients with DBMD is unclear as they are suspected of
having an increased risk for severe manifestations of COVID-19. In this article,
the authors discuss their consensus recommendations pertaining to care of these
patients during the pandemic. We address issues surrounding corticosteroid and
exon-skipping treatments, cardiac medications, hydroxychloroquine use,
emergency/respiratory care, rehabilitation management, and the conduct of
clinical trials. We highlight the importance of collaborative treatment decisions
between the patient, family, and health-care provider, considering any geographic
or institution-specific policies and precautions for COVID-19. We advocate for
continuing multidisciplinary care for these patients using telehealth.