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2020 ; 130
(3
): 170-171
Nephropedia Template TP
gab.com Text
Twit Text FOAVip
Twit Text #
English Wikipedia
Impact of COVID-19 related healthcare crisis on treatments for patients with
lysosomal storage disorders, the first Italian experience
#MMPMID32386848
Sechi A
; Macor D
; Valent S
; Da Riol RM
; Zanatta M
; Spinelli A
; Bianchi K
; Bertossi N
; Dardis A
; Valent F
; Scarpa M
Mol Genet Metab
2020[Jul]; 130
(3
): 170-171
PMID32386848
show ga
The direct and indirect effects of Coronavirus Disease-19 (COVID-19) pandemic, on
Italian patients with lysosomal storage disorders receiving therapy, were
analyzed by a phone questionnaire. No proved COVID-19 emerged among 102
interviewed. No problems were reported by patients receiving oral treatments.
Forty-nine% of patients receiving enzyme replacement therapy in hospitals
experienced disruptions, versus 6% of those home-treated. The main reasons of
missed infusions were fear of infection (62.9%) and re-organization of the
infusion centers (37%).