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2018 ; 7
(7
): ä Nephropedia Template TP
gab.com Text
Twit Text FOAVip
Twit Text #
English Wikipedia
The research data management platform (RDMP): A novel, process driven,
open-source tool for the management of longitudinal cohorts of clinical data
#MMPMID29790950
Nind T
; Galloway J
; McAllister G
; Scobbie D
; Bonney W
; Hall C
; Tramma L
; Reel P
; Groves M
; Appleby P
; Doney A
; Guthrie B
; Jefferson E
Gigascience
2018[Jul]; 7
(7
): ä PMID29790950
show ga
BACKGROUND: The Health Informatics Centre at the University of Dundee provides a
service to securely host clinical datasets and extract relevant data for
anonymized cohorts to researchers to enable them to answer key research
questions. As is common in research using routine healthcare data, the service
was historically delivered using ad-hoc processes resulting in the slow provision
of data whose provenance was often hidden to the researchers using it. This paper
describes the development and evaluation of the Research Data Management Platform
(RDMP): an open source tool to load, manage, clean, and curate longitudinal
healthcare data for research and provide reproducible and updateable datasets for
defined cohorts to researchers. RESULTS: Between 2013 and 2017, RDMP tool
implementation tripled the productivity of data analysts producing data releases
for researchers from 7.1 to 25.3 per month and reduced the error rate from 12.7%
to 3.1%. The effort on data management reduced from a mean of 24.6 to 3.0 hours
per data release. The waiting time for researchers to receive data after agreeing
a specification reduced from approximately 6 months to less than 1 week. The
software is scalable and currently manages 163 datasets. A total 1,321 data
extracts for research have been produced, with the largest extract linking data
from 70 different datasets. CONCLUSIONS: The tools and processes that encompass
the RDMP not only fulfil the research data management requirements of researchers
but also support the seamless collaboration of data cleaning, data
transformation, data summarization and data quality assessment activities by
different research groups.