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2018 ; 98
(3
): 735-741
Nephropedia Template TP
gab.com Text
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Twit Text #
English Wikipedia
"It s Like a Phantom Disease": Patient Perspectives on Access to Treatment for
Chagas Disease in the United States
#MMPMID29380723
Forsyth CJ
; Hernandez S
; Flores CA
; Roman MF
; Nieto JM
; Marquez G
; Sequeira J
; Sequeira H
; Meymandi SK
Am J Trop Med Hyg
2018[Mar]; 98
(3
): 735-741
PMID29380723
show ga
Chagas disease (CD) affects > 6 million people globally, including > 300,000 in
the United States. Although early detection and etiological treatment prevents
chronic complications from CD, < 1% of U.S. cases have been diagnosed and
treated. This study explores access to etiological treatment from the perspective
of patients with CD. In semi-structured interviews with 50 Latin American-born
patients of the Center of Excellence for Chagas Disease at the Olive View-UCLA
Medical Center, we collected demographic information and asked patients about
their experiences managing the disease and accessing treatment. Patients were
highly marginalized, with 63.4% living below the U.S. poverty line, 60% lacking a
high school education, and only 12% with private insurance coverage. The main
barriers to accessing health care for CD were lack of providers, precarious
insurance coverage, low provider awareness, transportation difficulties, and
limited time off. Increasing access to diagnosis and treatment will not only
require a dramatic increase in provider and public education, but also
development of programs which are financially, linguistically, politically, and
geographically accessible to patients.