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10.1016/j.ymgmr.2017.10.012

http://scihub22266oqcxt.onion/10.1016/j.ymgmr.2017.10.012
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C5675729!5675729!29159073
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suck abstract from ncbi


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pmid29159073      Mol+Genet+Metab+Rep 2018 ; 14 (ä): 15-8
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  • Home infusion with Elosulfase alpha (VimizimR) in a UK Paediatric setting #MMPMID29159073
  • Finnigan N; Roberts J; Mercer J; Jones SA
  • Mol Genet Metab Rep 2018[Mar]; 14 (ä): 15-8 PMID29159073show ga
  • Enzyme replacement therapy is the only available treatment for Mucopolysaccharidosis type IVA (MPS IVA, Morquio syndrome). The treatment is lengthy and invasive involving weekly intravenous infusions of 4?5 h. This can cause significant disruption to normal family life so the provision of a safe and effective homecare service is essential. In order to deliver a safe service, robust standards must be in place; this includes appropriately trained members of homecare staff, detailed management for infusion related reactions (IRR) and appropriate venous access. In this report we demonstrate the criteria required to ensure a successful home treatment programme and describe our experience thus far.
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