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10.1177/2054358117703386 http://scihub22266oqcxt.onion/10.1177/2054358117703386 C5405877!5405877 !28491338     free     free     free Warning: file_get_contents(https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pubmed&id=28491338 &cmd=llinks): Failed to open stream: HTTP request failed! 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Setting New Directions for Research in Childhood Nephrotic Syndrome: Results From a National Workshop |pdf=|usr=}}{{28491338 }} gab.com Text Setting New Directions for Research in Childhood Nephrotic Syndrome: Results From a National Workshop JO: Can J Kidney Health Dis http://www.kidney.de/pget.php?&tw=1&pmid=28491338 #FOAvip BACKGROUND: We report on the proceedings of a national workshop held in Canada with the aims to identify priorities for research in childhood nephrotic syndrome and to develop a national strategy to address these priorities. METHODS: A diverse group of participants attended the meeting, including patients, family members, researchers, and health care providers. We used small group discussions to explore priorities as perceived by patients and families and by health care providers and researchers. RESULTS: Research evaluating glucocorticoid minimization or glucocorticoid-sparing regimens was a consistent theme in the patient and family discussion group. Families also indicated the need for precise prognostic information at diagnosis, more information to help them choose the best available therapy, and more resources for disease management. Health care providers emphasized the importance of better disease characterization including genotyping and phenotyping patients, better understanding the pathogenesis, and the need of providing targeted therapy and precise prognostic information. CONCLUSIONS: These priorities will inform the development and future directions of the Canadian Childhood Nephrotic Syndrome (CHILDNEPH) project, a national research initiative to improve care and outcomes of patients with childhood onset nephrotic syndrome. Twit Text FOAVip Setting New Directions for Research in Childhood Nephrotic Syndrome: Results From a National Workshop ????Can J Kidney Health Dis http://www.kidney.de/pget.php?&tw=1&pmid=28491338 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=28491338 #FOAvip English Wikipedia <ref>{{Cite pmid|28491338 }}</ref> Setting New Directions for Research in Childhood Nephrotic Syndrome: Results From a National Workshop #MMPMID28491338 Samuel SM ; Takano T ; Scott S ; Benoit G ; Bitzan M ; Mammen C ; Ryan L ; Morgan C Can J Kidney Health Dis 2017[]; 4 (ä): 2054358117703386 PMID28491338 show ga BACKGROUND: We report on the proceedings of a national workshop held in Canada with the aims to identify priorities for research in childhood nephrotic syndrome and to develop a national strategy to address these priorities. METHODS: A diverse group of participants attended the meeting, including patients, family members, researchers, and health care providers. We used small group discussions to explore priorities as perceived by patients and families and by health care providers and researchers. RESULTS: Research evaluating glucocorticoid minimization or glucocorticoid-sparing regimens was a consistent theme in the patient and family discussion group. Families also indicated the need for precise prognostic information at diagnosis, more information to help them choose the best available therapy, and more resources for disease management. Health care providers emphasized the importance of better disease characterization including genotyping and phenotyping patients, better understanding the pathogenesis, and the need of providing targeted therapy and precise prognostic information. CONCLUSIONS: These priorities will inform the development and future directions of the Canadian Childhood Nephrotic Syndrome (CHILDNEPH) project, a national research initiative to improve care and outcomes of patients with childhood onset nephrotic syndrome. äSetting New Directions for Research in Childhood Nephrotic Syndrome: R(epmc).pdf DeepDyve Pubget Overpricing