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10.1038/ejhg.2016.52 http://scihub22266oqcxt.onion/10.1038/ejhg.2016.52 C5110051!5110051!27222291     free     free     free Deprecated: Implicit conversion from float 233.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 233.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 233.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 233.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 233.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534       Eur+J+Hum+Genet 2016 ; 24 (11): 1553-8 Nephropedia Template TP {{tp|p=27222291|t=2016. The risk of re-identification versus the need to identify individuals in rare disease research |pdf=|usr=}}{{27222291}} gab.com Text The risk of re-identification versus the need to identify individuals in rare disease research JO: Eur J Hum Genet http://www.kidney.de/pget.php?&tw=1&pmid=27222291 #FOAvip There is a growing concern in the ethics literature and among policy makers that de-identification or coding of personal data and biospecimens is not sufficient for protecting research subjects from privacy invasions and possible breaches of confidentiality due to the possibility of unauthorized re-identification. At the same time, there is a need in medical science to be able to identify individual patients. In particular for rare disease research there is a special and well-documented need for research collaboration so that data and biosamples from multiple independent studies can be shared across borders. In this article, we identify the needs and arguments related to de-identification and re-identification of patients and research subjects and suggest how the different needs may be balanced within a framework of using unique encrypted identifiers. Twit Text FOAVip The risk of re-identification versus the need to identify individuals in rare disease research ????Eur J Hum Genet http://www.kidney.de/pget.php?&tw=1&pmid=27222291 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=27222291 #FOAvip English Wikipedia <ref>{{Cite pmid|27222291}}</ref> The risk of re-identification versus the need to identify individuals in rare disease research #MMPMID27222291 Hansson MG; Lochmüller H; Riess O; Schaefer F; Orth M; Rubinstein Y; Molster C; Dawkins H; Taruscio D; Posada M; Woods S Eur J Hum Genet 2016[Nov]; 24 (11): 1553-8 PMID27222291show ga There is a growing concern in the ethics literature and among policy makers that de-identification or coding of personal data and biospecimens is not sufficient for protecting research subjects from privacy invasions and possible breaches of confidentiality due to the possibility of unauthorized re-identification. At the same time, there is a need in medical science to be able to identify individual patients. In particular for rare disease research there is a special and well-documented need for research collaboration so that data and biosamples from multiple independent studies can be shared across borders. In this article, we identify the needs and arguments related to de-identification and re-identification of patients and research subjects and suggest how the different needs may be balanced within a framework of using unique encrypted identifiers. äThe risk of re-identification versus the need to identify individuals (epmc).pdf DeepDyve Pubget Overpricing