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2016 ; 16
(1
): 152
Nephropedia Template TP
gab.com Text
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The experiences, unmet needs and outcomes of parents of severely injured
children: a longitudinal mixed methods study protocol
#MMPMID27599987
Foster K
; Curtis K
; Mitchell R
; Van C
; Young A
BMC Pediatr
2016[Sep]; 16
(1
): 152
PMID27599987
show ga
BACKGROUND: Being the parent of a severely injured child involves many stressors
throughout the trauma journey. Internationally, little is known about the
experiences or levels of emotional distress, parenting stress, quality of life,
and resilience for parents of injured children. The aim of this study is to
investigate the experiences, unmet needs and outcomes of parents of physically
injured children 0-12 years over the 2 year period following injury.
METHODS/DESIGN: This is a prospective longitudinal study using an embedded mixed
methods design. This design has a primary qualitative strand which incorporates
supplementary quantitative data on child quality of life, and parental quality of
life, parenting stress, emotional distress, and resilience at four time points;
the acute hospitalisation phase, and at 6, 12 and 24 months following injury. The
primary sample are parents of injured children 0-12 years hospitalised in the
Australian states of New South Wales, Queensland, Victoria and South Australia.
Primary data sources are child and parent demographic data; survey data; and
semi-structured interview data across a 24 month period. DISCUSSION: This study
aims to address the existing gap in knowledge on the experiences and unmet
support needs of parents in the 2 years following child injury to provide
guidance for care provision for these families. There is a lack of evidence-based
recommendations for supporting parents and families of injured children and
strengthening their capacity to address the challenges they face.