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2014 ; 2014
(ä): 816729
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The Lived Experience of Lupus Flares: Features, Triggers, and Management in an
Australian Female Cohort
#MMPMID26464865
Squance ML
; Reeves GE
; Bridgman H
Int J Chronic Dis
2014[]; 2014
(ä): 816729
PMID26464865
show ga
Individuals living with lupus commonly experience daily backgrounds of symptoms
managed to acceptable tolerance levels to prevent organ damage. Despite
management, exacerbation periods (flares) still occur. Varied clinical
presentations and unpredictable symptom exacerbation patterns provide management
and assessment challenges. Patient perceptions of symptoms vary with perceived
impact, lifestyles, available support, and self-management capacity. Therefore,
to increase our understanding of lupus' health impacts and management, it was
important to explore lupus flare characteristics from the patient viewpoint.
Lupus flares in 101 Australian female patients were retrospectively explored with
the use of a novel flare definition. Qualitative methods were used to explore
patient-perceived flare symptoms, triggers, and management strategies adopted to
alleviate symptom exacerbations. A mean of 29.9 flare days, with 6.8 discrete
flares, was experienced. The study confirmed that patients perceive stress,
infection, and UV light as flare triggers and identified new potential triggers
of temperature and weather changes, work, and chemical exposure from home
cleaning. The majority of flares were self-managed with patients making
considered management choices without medical input. Barriers to seeking medical
support included appointment timings and past negative experiences reflecting
incongruence between clinician and patient views of symptom impact, assessment,
and ultimately flare occurrence.