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The Family Stress Model in families of children with rare diseases: a
cross-sectional multilevel path analysis for understanding family dynamics
#MMPMID41341441
Boettcher J
; Hohmann S
; Daubmann A
; Denecke J
; Muntau AC
; Wiegand-Grefe S
; Zapf H
Front Public Health
2025[]; 13
(?): 1713613
PMID41341441
show ga
BACKGROUND: Theoretical frameworks, such as the Family Stress Model, have been
evaluated in various contexts; however, there is a lack of large-scale studies
specifically focusing on families of children with rare diseases. OBJECTIVE: To
examine the applicability of the Family Stress model within a large-scale sample
of families of children with rare diseases. METHODS: The potential predictors of
children's mental health in a multicenter study of n?=?872 parents of children
with rare diseases were investigated. Factors contributing to children's mental
health within the Family Stress Model were investigated via cross-sectional
multilevel path model. RESULTS: Relevant associations were found among all
variables. The multilevel model based on our data only partially supported the
Family Stress Model. In our model, the quality of the parental relationship was
not relevantly associated with stress and depressive symptoms. CONCLUSION: Our
findings show that the Family Stress Model is not supported entirely in a
multilevel analysis of families of children with rare diseases. Nevertheless, the
results underscore the importance of focusing on alleviating parental stress,
which could diminish intra-family psychopathology. CLINICAL TRIAL REGISTRATION:
The study was registered on September 21, 2024, with the identifier number
NCT04382820 at ClinicalTrials.gov.
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