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10.1177/26892820251390489

http://scihub22266oqcxt.onion/10.1177/26892820251390489
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C12670708!12670708 !41340647
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suck abstract from ncbi

pmid41340647
      Palliat+Med+Rep 2025 ; 6 (1 ): 521-526
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  • Allostatic Load Borne by Caregivers of Children with Serious Conditions: Acceptability of Self-Reported Data #MMPMID41340647
  • Grossoehme DH ; Friebert S ; Jenkins R ; Pelletier JH ; White PC ; Forbes ML
  • Palliat Med Rep 2025[]; 6 (1 ): 521-526 PMID41340647 show ga
  • BACKGROUND: Stress due to a child's serious medical condition affects the entire family. The cumulative stress burden ("allostatic load") has deleterious health and economic effects. OBJECTIVE: Demonstrate adequate caregiver willingness to disclose health care utilization and work/school attendance. SETTING/SUBJECTS: We enrolled caregivers of well children (WC), children with medical complexity (CMC), and children receiving palliative care (PC) (N = 15; 5 per group) in a midwestern United States pediatric hospital. MEASUREMENTS: A novel allostatic load questionnaire and the Family Appraisal of Caregiving Questionnaire for Palliative Care were used. RESULTS: All caregivers (100% female) completed the study, with 9% of data missing. PC participants reported greater child health care appointments and admissions compared with WC and CMC. CONCLUSIONS: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, results suggest pediatricians should routinely assess caregiver burden even at well-child visits.
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