Conceptualizing culture change as an impact metric A scoping review and abductive thematic analysis of culture-related outcomes from patient and public involvement in healthcare and health research #MMPMID41353191
Res Involv Engagem 2025[Dec]; ? (?): ? PMID41353191show ga
Patient and public involvement (PPI) is now widely encouraged in healthcare and health research. While many studies look at the results of individual projects, much less is known about how strategic PPI - that is, planned, long-term approaches to PPI - can change the culture of healthcare and health research. Culture change is a difficult idea to work with, because it includes ways of acting and thinking that are not always easy to see or measure. However, if we want PPI to become a natural and lasting part of healthcare and health research, understanding its cultural impact is essential. In this study, we reviewed 22 studies and found 132 outcomes linked to culture change. We grouped these outcomes into 15 categories and 5 subcategories across three levels in a model that we developed called the PPI Culture Change (PPI-CC) model: (1) the micro level, describing user socialization process (2), the meso level, describing organizational commitment, and (3) the macro level, describing regulatory assumptions. This model shows how strategic PPI can support culture change at different levels of healthcare and health research. It should be seen as a conceptual starting point, not a ready-made tool. It highlights culture change as an important impact of PPI in its own right and proposes that evaluation should be understood as a process of learning - helping healthcare organizations and research teams reflect, adapt, and strengthen their PPI efforts in meaningful ways towards long-term, sustainable culture change.