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Care and Precision Medicine Research in the Time of COVID-19 #MMPMID34295127
Ison JM; Karlson EW; Jackson JD; Hille A; McCloud C; Bor M; Zhou G; Clark CR
Ethn Dis 2021[Sum]; 31 (3): 407-410 PMID34295127show ga
PURPOSE: Enhancing the bidirectional benefit of precision medicine research infrastructure may advance equity in research participation for diverse groups. This study explores the use of research infrastructure to provide human-centered COVID-19 resources to participants as a part of their research participation. DESIGN: The All of Us New England (AoUNE) consortium research team developed standardized check-in telephone calls to ask participants about their well-being and share COVID-19 resources. PARTICIPANTS: A total of 20,559 participants in the AoUNE consortium received a COVID-19 check-in call. METHODS: Research assistants called participants during March-April 2020, distributed COVID-19 resources to interested participants, and subsequently rated call tone. RESULTS: Of the total cohort participants called, 8,512 (41%) spoke with a research team member. The majority of calls were rated as positive or neutral; only 3% rated as negative. African American and Black as well as Hispanic populations requested COVID-19 resources at higher rates than other groups. CONCLUSIONS: Calls made to AoUNE participants were received positively by diverse groups. These findings may have implications for participant-centered engagement strategies in precision medicine research.
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Ethn+Dis 2021 ; 31 (3): 407-410
