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10.1089/pmr.2021.0013

http://scihub22266oqcxt.onion/10.1089/pmr.2021.0013
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34223520!8244510!34223520
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suck abstract from ncbi


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pmid34223520      Palliat+Med+Rep 2021 ; 2 (1): 194-198
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  • A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning #MMPMID34223520
  • Dassel KB; Towsley GL; Utz RL; Ellington L; Terrill A; Scammon D; Bristol AA; Thompson A; Mickens M
  • Palliat Med Rep 2021[]; 2 (1): 194-198 PMID34223520show ga
  • Background: Little is known about how COVID-19 has influenced the role of family caregivers in advance care planning (ACP). Objectives: To explore the experiences of family caregivers and ACP in the United States during the COVID-19 pandemic. Design: Exploratory sequential mixed-methods design of caregiver characteristics and pandemic response to ACP. Settings/Subjects: Family caregivers of care recipients with varied caregiving needs (dementia, mental illness, etc.). Measurements: Quantitative survey was done of fixed-choice questions of 82 caregivers. Semistructured qualitative telephone interviews were performed of a subsample of participants (n = 28). Results: Some (19%) of family caregivers revisited or updated advance directives of care recipients and/or had some type of contingency plan (33%) if they were to become ill. We identified three barriers caregivers faced during the pandemic that may have limited their engagement with ACP. Conclusions: Family caregivers need education regarding ACP and specific resources that can guide and support them through the process of ACP, for both themselves and care recipients.
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