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10.3390/jcm10081640 http://scihub22266oqcxt.onion/10.3390/jcm10081640 33921526!8069741!33921526     free     free     free Warning: file_get_contents(https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pubmed&id=33921526&cmd=llinks): Failed to open stream: HTTP request failed! HTTP/1.1 429 Too Many Requests in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 215       J+Clin+Med 2021 ; 10 (8): ? Nephropedia Template TP {{tp|p=33921526|t=2021. The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension Parental Anxiety and Attitudes Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL) |pdf=|usr=}}{{33921526}} gab.com Text The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension Parental Anxiety and Attitudes Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL) JO: J Clin Med http://www.kidney.de/pget.php?&tw=1&pmid=33921526 #FOAvip The COVID-19 pandemic has impacted healthcare systems worldwide. Little is known about the impact of the pandemic on medical and psycho-social aspects of children with rare diseases such as pulmonary arterial hypertension and their parents. The study is based on children registered in The Database of Pulmonary Hypertension in the Polish Population and a parent-reported survey deployed during the first 6 months of the pandemic. The questionnaire consisted of six question panels: demographic data, fear of COVID-19, General Anxiety Disorder-7 (GAD-7), social impact of pandemic, patients' medical status, and alarming symptoms (appearance or exacerbation). Out of 80 children registered, we collected 58 responses (72.5% response rate). Responders (parents) were mostly female (n = 55; 94.8%) at a mean age of 40.6 +/- 6.9 years. Patients (children) were both females (n = 32; 55%) and males with a mean age of 10.0 +/- 5.1 years. Eleven (19%) children had symptoms of potential disease exacerbation. Eight parents (72.7%) decided for watchful waiting while others contacted their GPs or cardiologists (n = 6; 54.5%). Three children had to be hospitalized (27.3%). Most planned hospitalizations (27/48; 56.2%) and out-patient visits (20/35; 57.1%) were cancelled, delayed, or substituted by telehealth services. Among the participating parents, the study shows very high levels of anxiety (n = 20; 34.5%) and concern (n = 55; 94.8%) and the need for detailed information (52; 89.6%) regarding COVID-19 and medical service preparedness during the pandemic. The COVID-19 pandemic has influenced child healthcare and caused high levels of anxiety among parents. Twit Text FOAVip The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension Parental Anxiety and Attitudes Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL) ????J Clin Med http://www.kidney.de/pget.php?&tw=1&pmid=33921526 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=33921526 #FOAvip English Wikipedia <ref>{{Cite pmid|33921526}}</ref> The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension Parental Anxiety and Attitudes Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL) #MMPMID33921526 Kwiatkowska J; Meyer-Szary J; Mazurek-Kula A; Zuk M; Migdal A; Kusa J; Skiba E; Zygielo K; Przetocka K; Kordon Z; Banaszak P; Michalczyk A; Rzeznik-Bieniaszewska A; Surmacz R; Bobkowski W; Wojcicka-Urbanska B; Werner B; Pluzanska J; Ostrowska K; Bazgier M; Kopec G J Clin Med 2021[Apr]; 10 (8): ? PMID33921526show ga The COVID-19 pandemic has impacted healthcare systems worldwide. Little is known about the impact of the pandemic on medical and psycho-social aspects of children with rare diseases such as pulmonary arterial hypertension and their parents. The study is based on children registered in The Database of Pulmonary Hypertension in the Polish Population and a parent-reported survey deployed during the first 6 months of the pandemic. The questionnaire consisted of six question panels: demographic data, fear of COVID-19, General Anxiety Disorder-7 (GAD-7), social impact of pandemic, patients' medical status, and alarming symptoms (appearance or exacerbation). Out of 80 children registered, we collected 58 responses (72.5% response rate). Responders (parents) were mostly female (n = 55; 94.8%) at a mean age of 40.6 +/- 6.9 years. Patients (children) were both females (n = 32; 55%) and males with a mean age of 10.0 +/- 5.1 years. Eleven (19%) children had symptoms of potential disease exacerbation. Eight parents (72.7%) decided for watchful waiting while others contacted their GPs or cardiologists (n = 6; 54.5%). Three children had to be hospitalized (27.3%). Most planned hospitalizations (27/48; 56.2%) and out-patient visits (20/35; 57.1%) were cancelled, delayed, or substituted by telehealth services. Among the participating parents, the study shows very high levels of anxiety (n = 20; 34.5%) and concern (n = 55; 94.8%) and the need for detailed information (52; 89.6%) regarding COVID-19 and medical service preparedness during the pandemic. The COVID-19 pandemic has influenced child healthcare and caused high levels of anxiety among parents. ?The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hy(epmc).pdf DeepDyve Pubget Overpricing