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10.3233/JHD-200460 http://scihub22266oqcxt.onion/10.3233/JHD-200460 33896846!ä!33896846 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534       J+Huntingtons+Dis 2021 ; 10 (2): 313-322 Nephropedia Template TP {{tp|p=33896846|t=2021. Healthcare Delivery and Huntington s Disease During the Time of COVID-19 |pdf=|usr=}}{{33896846}} gab.com Text Healthcare Delivery and Huntington s Disease During the Time of COVID-19 JO: J Huntingtons Dis http://www.kidney.de/pget.php?&tw=1&pmid=33896846 #FOAvip BACKGROUND: Safer-at-home orders during the COVID-19 pandemic altered the structure of clinical care for Huntington's disease (HD) patients. This shift provided an opportunity to identify limitations in the current healthcare infrastructure and how these may impact the health and well-being of persons with HD. OBJECTIVE: The study objectives were to assess the feasibility of remote healthcare delivery in HD patients, to identify socioeconomic factors which may explain differences in feasibility and to evaluate the impact of safer-at-home orders on HD patient stress levels. METHODS: This observational study of a clinical HD population during the 'safer-at-home' orders asked patients or caregivers about their current access to healthcare resources and patient stress levels. A chart review allowed for an assessment of socioeconomic status and characterization of HD severity. RESULTS: Two-hundred and twelve HD patients were contacted with 156 completing the survey. During safer-at-home orders, the majority of HD patients were able to obtain medications and see a physician; however, 25% of patients would not commit to regular telehealth visits, and less than 50% utilized an online healthcare platform. We found that 37% of participants were divorced/single, 39% had less than a high school diploma, and nearly 20% were uninsured or on low-income health insurance. Patient stress levels correlated with disease burden. CONCLUSION: A significant portion of HD participants were not willing to participate in telehealth services. Potential explanations for these limitations may include socioeconomic barriers and caregiving structure. These observations illustrate areas for clinical care improvement to address healthcare disparities in the HD community. Twit Text FOAVip Healthcare Delivery and Huntington s Disease During the Time of COVID-19 ????J Huntingtons Dis http://www.kidney.de/pget.php?&tw=1&pmid=33896846 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=33896846 #FOAvip English Wikipedia <ref>{{Cite pmid|33896846}}</ref> Healthcare Delivery and Huntington s Disease During the Time of COVID-19 #MMPMID33896846 Pfalzer AC; Hale LM; Huitz E; Buchanan DA; Brown BK; Moroz S; Rouleau RM; Hay KR; Hoadley J; Laird A; Ciriegio AE; Watson KH; Jones MT; Lin YC; Kang H; Riordan H; Isaacs DA; McDonell KE; Compas BE; Claassen DO J Huntingtons Dis 2021[]; 10 (2): 313-322 PMID33896846show ga BACKGROUND: Safer-at-home orders during the COVID-19 pandemic altered the structure of clinical care for Huntington's disease (HD) patients. This shift provided an opportunity to identify limitations in the current healthcare infrastructure and how these may impact the health and well-being of persons with HD. OBJECTIVE: The study objectives were to assess the feasibility of remote healthcare delivery in HD patients, to identify socioeconomic factors which may explain differences in feasibility and to evaluate the impact of safer-at-home orders on HD patient stress levels. METHODS: This observational study of a clinical HD population during the 'safer-at-home' orders asked patients or caregivers about their current access to healthcare resources and patient stress levels. A chart review allowed for an assessment of socioeconomic status and characterization of HD severity. RESULTS: Two-hundred and twelve HD patients were contacted with 156 completing the survey. During safer-at-home orders, the majority of HD patients were able to obtain medications and see a physician; however, 25% of patients would not commit to regular telehealth visits, and less than 50% utilized an online healthcare platform. We found that 37% of participants were divorced/single, 39% had less than a high school diploma, and nearly 20% were uninsured or on low-income health insurance. Patient stress levels correlated with disease burden. CONCLUSION: A significant portion of HD participants were not willing to participate in telehealth services. Potential explanations for these limitations may include socioeconomic barriers and caregiving structure. These observations illustrate areas for clinical care improvement to address healthcare disparities in the HD community. |*COVID-19[MESH] |*Huntington Disease/epidemiology/therapy[MESH] |*Telemedicine[MESH] |Adult[MESH] |Cost of Illness[MESH] |Female[MESH] |Healthcare Disparities[MESH] |Humans[MESH] |Male[MESH] |Middle Aged[MESH] |Patient Acceptance of Health Care[MESH] |SARS-CoV-2[MESH] |Socioeconomic Factors[MESH]Healthcare Delivery and Huntington s Disease During the Time of COVID-(epmc).pdf DeepDyve Pubget Overpricing