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10.1080/21678421.2021.1912772 http://scihub22266oqcxt.onion/10.1080/21678421.2021.1912772 33860702!ä!33860702 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 231.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534       Amyotroph+Lateral+Scler+Frontotemporal+Degener 2022 ; 23 (1-2): 146-148 Nephropedia Template TP {{tp|p=33860702|t=2022. Amyotrophic lateral sclerosis caregiver burden and patients quality of life during COVID-19 pandemic |pdf=|usr=}}{{33860702}} gab.com Text Amyotrophic lateral sclerosis caregiver burden and patients quality of life during COVID-19 pandemic JO: Amyotroph Lateral Scler Frontotemporal Degener http://www.kidney.de/pget.php?&tw=1&pmid=33860702 #FOAvip Objective: To assess patients Quality of life (QoL) and the burden of their caregivers during Covid-19 pandemic and specifically the impact of two-month lockdown period. Methods: In April 2020, a total of 60 patients and 59 caregivers were administered by phone scales assessing patients' QoL (McGill QoL Questionnaire), general health status (EQ-5D-5L), and caregiver burden (Zarit Burden Interview). The administration was repeated one month after the end of lockdown measures, with the addition of a qualitative questionnaire (COVID-QoL Questionnaire) exploring family reorganization and personal perception of lock down. Results: QoL and perceived health status did not worsen during lockdown, while caregiver burden increased (p = 0.01). Patient's QoL and caregiver burden were inversely correlated at T1 (ZBI total score mildly correlated with Mc Gill existential subscore, p = 0.02, rho = 0.30 and with Mc Gill total score, p = 0.05, rho = 0.265). No significant correlations were found at T2. According to the COVID-QoL questionnaire, caregivers perceived lower family help compared to patients (p < 0.001). Conclusions: Restricted measures of lockdown period during COVID-19 pandemic did not result in a significant reduction of QoL in our cohort of ALS patients, while caregiver burden significantly increased. ALS motor impairment may have played a role in the unchanged life conditions of patients. Instead, the restriction of family help for primary caregivers could be responsible of their increased burden, reflecting the importance of a wide social support in the management of this clinical condition. Twit Text FOAVip Amyotrophic lateral sclerosis caregiver burden and patients quality of life during COVID-19 pandemic ????Amyotroph Lateral Scler Frontotemporal Degener http://www.kidney.de/pget.php?&tw=1&pmid=33860702 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=33860702 #FOAvip English Wikipedia <ref>{{Cite pmid|33860702}}</ref> Amyotrophic lateral sclerosis caregiver burden and patients quality of life during COVID-19 pandemic #MMPMID33860702 Giusiano S; Peotta L; Iazzolino B; Mastro E; Arcari M; Palumbo F; Torrieri MC; Bombaci A; Grassano M; Cabras S; Di Pede F; DeMattei F; Matteoni E; Solero L; Daviddi M; Salamone P; Fuda G; Manera U; Canosa A; Chio A; Calvo A; Moglia C; Vasta R Amyotroph Lateral Scler Frontotemporal Degener 2022[Feb]; 23 (1-2): 146-148 PMID33860702show ga Objective: To assess patients Quality of life (QoL) and the burden of their caregivers during Covid-19 pandemic and specifically the impact of two-month lockdown period. Methods: In April 2020, a total of 60 patients and 59 caregivers were administered by phone scales assessing patients' QoL (McGill QoL Questionnaire), general health status (EQ-5D-5L), and caregiver burden (Zarit Burden Interview). The administration was repeated one month after the end of lockdown measures, with the addition of a qualitative questionnaire (COVID-QoL Questionnaire) exploring family reorganization and personal perception of lock down. Results: QoL and perceived health status did not worsen during lockdown, while caregiver burden increased (p = 0.01). Patient's QoL and caregiver burden were inversely correlated at T1 (ZBI total score mildly correlated with Mc Gill existential subscore, p = 0.02, rho = 0.30 and with Mc Gill total score, p = 0.05, rho = 0.265). No significant correlations were found at T2. According to the COVID-QoL questionnaire, caregivers perceived lower family help compared to patients (p < 0.001). Conclusions: Restricted measures of lockdown period during COVID-19 pandemic did not result in a significant reduction of QoL in our cohort of ALS patients, while caregiver burden significantly increased. ALS motor impairment may have played a role in the unchanged life conditions of patients. Instead, the restriction of family help for primary caregivers could be responsible of their increased burden, reflecting the importance of a wide social support in the management of this clinical condition. |*Amyotrophic Lateral Sclerosis/epidemiology[MESH] |*COVID-19[MESH] |Caregiver Burden[MESH] |Caregivers[MESH] |Communicable Disease Control[MESH] |Cost of Illness[MESH] |Humans[MESH] |Pandemics[MESH] |Quality of Life[MESH] |SARS-CoV-2[MESH]Amyotrophic lateral sclerosis caregiver burden and patients quality o(epmc).pdf DeepDyve Pubget Overpricing