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10.1186/s13023-021-01734-3 http://scihub22266oqcxt.onion/10.1186/s13023-021-01734-3 33632267!7906766!33632267     free     free     free Warning: file_get_contents(https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pubmed&id=33632267&cmd=llinks): Failed to open stream: HTTP request failed! HTTP/1.1 429 Too Many Requests in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 215 Deprecated: Implicit conversion from float 211.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 211.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 211.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 211.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 211.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534       Orphanet+J+Rare+Dis 2021 ; 16 (1): 88 Nephropedia Template TP {{tp|p=33632267|t=2021. Unmasked: an insight into three patients rare disease experiences during the COVID-19 pandemic |pdf=|usr=}}{{33632267}} gab.com Text Unmasked: an insight into three patients rare disease experiences during the COVID-19 pandemic JO: Orphanet J Rare Dis http://www.kidney.de/pget.php?&tw=1&pmid=33632267 #FOAvip This article describes my reflections of speaking with three patients and their families living with mastocytosis, who I was introduced to through the UK Mastocytosis Support Group. I discuss the various ways in which the condition affects their day-to-day lives and how this has changed during the Covid-19 pandemic. I have tried to give an insight into the particular difficulties that this patient group faces, both during and before the pandemic, whilst also considering how these challenges may resonate more widely with other patient groups in the rare disease community. Pseudonyms are used throughout to protect patient anonymity. Twit Text FOAVip Unmasked: an insight into three patients rare disease experiences during the COVID-19 pandemic ????Orphanet J Rare Dis http://www.kidney.de/pget.php?&tw=1&pmid=33632267 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=33632267 #FOAvip English Wikipedia <ref>{{Cite pmid|33632267}}</ref> Unmasked: an insight into three patients rare disease experiences during the COVID-19 pandemic #MMPMID33632267 Chaplin C Orphanet J Rare Dis 2021[Feb]; 16 (1): 88 PMID33632267show ga This article describes my reflections of speaking with three patients and their families living with mastocytosis, who I was introduced to through the UK Mastocytosis Support Group. I discuss the various ways in which the condition affects their day-to-day lives and how this has changed during the Covid-19 pandemic. I have tried to give an insight into the particular difficulties that this patient group faces, both during and before the pandemic, whilst also considering how these challenges may resonate more widely with other patient groups in the rare disease community. Pseudonyms are used throughout to protect patient anonymity. |Activities of Daily Living[MESH] |Adult[MESH] |COVID-19/complications/*prevention & control/psychology[MESH] |Female[MESH] |Humans[MESH] |Mastocytosis/complications/*therapy[MESH]Unmasked: an insight into three patients rare disease experiences dur(epmc).pdf DeepDyve Pubget Overpricing