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10.1093/rheumatology/keab174

http://scihub22266oqcxt.onion/10.1093/rheumatology/keab174
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33629107!7928589!33629107
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suck abstract from ncbi


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pmid33629107      Rheumatology+(Oxford) 2021 ; 60 (SI): SI77-SI84
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  • The impact of the COVID-19 pandemic on people with rheumatic and musculoskeletal diseases: insights from patient-generated data on social media #MMPMID33629107
  • Reuter K; Deodhar A; Makri S; Zimmer M; Berenbaum F; Nikiphorou E
  • Rheumatology (Oxford) 2021[Oct]; 60 (SI): SI77-SI84 PMID33629107show ga
  • OBJECTIVES: During the COVID-19 pandemic, much communication occurred online, through social media. This study aimed to provide patient perspective data on how the COVID-19 pandemic impacted people with rheumatic and musculoskeletal diseases (RMDs), using Twitter-based patient-generated health data (PGHD). METHODS: A convenience sample of Twitter messages in English posted by people with RMDs was extracted between 1 March and 12 July 2020 and examined using thematic analysis. Included were Twitter messages that mentioned keywords and hashtags related to both COVID-19 (or SARS-CoV-2) and select RMDs. The RMDs monitored included inflammatory-driven (joint) conditions (ankylosing spondylitis, RA, PsA, lupus/SLE and gout). RESULTS: The analysis included 569 tweets by 375 Twitter users with RMDs across several countries. Eight themes emerged regarding the impact of the COVID-19 pandemic on people with RMDs: (i) lack of understanding of SARS-CoV-2/COVID-19; (ii) critical changes in health behaviour; (iii) challenges in healthcare practice and communication with healthcare professionals; (iv) difficulties with access to medical care; (v) negative impact on physical and mental health, coping strategies; (vi) issues around work participation; (vii) negative effects of the media; and (viii) awareness-raising. CONCLUSION: The findings show that Twitter serves as a real-time data source to understand the impact of the COVID-19 pandemic on people with RMDs. The platform provided 'early signals' of potentially critical health behaviour changes. Future epidemics might benefit from the real-time use of Twitter-based PGHD to identify emerging health needs, facilitate communication and inform clinical practice decisions.
  • |*Social Media[MESH]
  • |Adaptation, Psychological[MESH]
  • |COVID-19/*prevention & control[MESH]
  • |Communication[MESH]
  • |Health Behavior[MESH]
  • |Health Services Accessibility[MESH]
  • |Humans[MESH]
  • |Musculoskeletal Diseases/*psychology[MESH]
  • |Quarantine/*psychology[MESH]
  • |Rheumatic Diseases/*psychology[MESH]


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