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10.1186/s13023-021-01711-w http://scihub22266oqcxt.onion/10.1186/s13023-021-01711-w 33522938!7848872!33522938     free     free     free Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534       Orphanet+J+Rare+Dis 2021 ; 16 (1): 61 Nephropedia Template TP {{tp|p=33522938|t=2021. The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research |pdf=|usr=}}{{33522938}} gab.com Text The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research JO: Orphanet J Rare Dis http://www.kidney.de/pget.php?&tw=1&pmid=33522938 #FOAvip PURPOSE: The coronavirus disease 2019 (COVID-19) pandemic has had unprecedented impact on the provision of medical care for genetic disorders. The purpose of this study was to assess the effects of the pandemic on neurofibromatosis (NF) care and research. METHODS: Sixty-three United States NF clinics were surveyed to identify the impact of the pandemic on clinician role, patient volume, continuity of guideline-driven surveillance, research protocols, and use of (and satisfaction with) telehealth for the delivery of NF care. RESULTS: Fifty-two clinic directors or their representatives completed the survey (83% response rate). About 2/3 of the clinics reported a greater than 50% decrease in the number of available patient appointments, and modified clinical surveillance and research protocols. Fifty-one clinics (98%) newly instituted telehealth during the pandemic. Barriers to telehealth prior to the pandemic were insurance reimbursement concerns and lack of infrastructure. Since telehealth was initiated, high provider satisfaction was reported with ease of use. The most common area of concern was related to inability to perform a physical examination. CONCLUSION: Results show marked impacts on NF care and research since the beginning of the pandemic, with potential long-term changes related to the introduction (or adoption) of telehealth for clinical care. Twit Text FOAVip The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research ????Orphanet J Rare Dis http://www.kidney.de/pget.php?&tw=1&pmid=33522938 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=33522938 #FOAvip English Wikipedia <ref>{{Cite pmid|33522938}}</ref> The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research #MMPMID33522938 Radtke HB; Klein-Tasman BP; Merker VL; Knight P; Ullrich NJ; Jordan JT; Korf B; Plotkin SR Orphanet J Rare Dis 2021[Feb]; 16 (1): 61 PMID33522938show ga PURPOSE: The coronavirus disease 2019 (COVID-19) pandemic has had unprecedented impact on the provision of medical care for genetic disorders. The purpose of this study was to assess the effects of the pandemic on neurofibromatosis (NF) care and research. METHODS: Sixty-three United States NF clinics were surveyed to identify the impact of the pandemic on clinician role, patient volume, continuity of guideline-driven surveillance, research protocols, and use of (and satisfaction with) telehealth for the delivery of NF care. RESULTS: Fifty-two clinic directors or their representatives completed the survey (83% response rate). About 2/3 of the clinics reported a greater than 50% decrease in the number of available patient appointments, and modified clinical surveillance and research protocols. Fifty-one clinics (98%) newly instituted telehealth during the pandemic. Barriers to telehealth prior to the pandemic were insurance reimbursement concerns and lack of infrastructure. Since telehealth was initiated, high provider satisfaction was reported with ease of use. The most common area of concern was related to inability to perform a physical examination. CONCLUSION: Results show marked impacts on NF care and research since the beginning of the pandemic, with potential long-term changes related to the introduction (or adoption) of telehealth for clinical care. |COVID-19/*epidemiology[MESH] |Humans[MESH] |Neurofibromatoses/*epidemiology[MESH] |Pandemics/statistics & numerical data[MESH] |Patient Satisfaction[MESH] |Rare Diseases[MESH] |SARS-CoV-2/*pathogenicity[MESH] |Telemedicine/*methods[MESH]The impact of the COVID-19 pandemic on neurofibromatosis clinical care(epmc).pdf DeepDyve Pubget Overpricing