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10.1111/epi.16779

http://scihub22266oqcxt.onion/10.1111/epi.16779
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33258109!7753328!33258109
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suck abstract from ncbi


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pmid33258109      Epilepsia 2021 ; 62 (1): 41-50
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  • Seizure control, stress, and access to care during the COVID-19 pandemic in New York City: The patient perspective #MMPMID33258109
  • Rosengard JL; Donato J; Ferastraoaru V; Zhao D; Molinero I; Boro A; Gursky J; Correa DJ; Galanopoulou AS; Hung C; Legatt AD; Patel P; Rubens E; Moshe SL; Haut S
  • Epilepsia 2021[Jan]; 62 (1): 41-50 PMID33258109show ga
  • OBJECTIVE: Our epilepsy population recently experienced the acute effects of the COVID-19 pandemic in New York City. Herein, we aimed to determine patient-perceived seizure control during the surge, specific variables associated with worsened seizures, the prevalence of specific barriers to care, and patient-perceived efficacy of epilepsy care delivered via telephone and live video visits during the pandemic. METHODS: We performed a cross-sectional questionnaire study of adult epilepsy patients who had a scheduled appointment at a single urban Comprehensive Epilepsy Center (Montefiore Medical Center) between March 1, 2020 and May 31, 2020 during the peak of the COVID-19 pandemic in the Bronx. Subjects able to answer the questionnaire themselves in English or Spanish were eligible to complete a one-time survey via telephone or secure online platform (REDCap). RESULTS: Of 1212 subjects screened, 675 were eligible, and 177 adequately completed the questionnaire. During the COVID-19 pandemic, 75.1% of patients reported no change in seizure control, whereas 17.5% reported that their seizure control had worsened, and 7.3% reported improvement. Subjects who reported worsened seizure control had more frequent seizures at baseline, were more likely to identify stress and headaches/migraines as their typical seizure precipitants, and were significantly more likely to report increased stress related to the pandemic. Subjects with confirmed or suspected COVID-19 did not report worsened seizure control. Nearly 17% of subjects reported poorer epilepsy care, and 9.6% had difficulty obtaining their antiseizure medications; these subjects were significantly more likely to report worse seizure control. SIGNIFICANCE: Of the nearly 20% of subjects who reported worsened seizure control during the COVID-19 pandemic, stress and barriers to care appear to have posed the greatest challenge. This unprecedented pandemic exacerbated existing and created new barriers to epilepsy care, which must be addressed.
  • |*Attitude to Health[MESH]
  • |*Health Services Accessibility[MESH]
  • |*Urban Population[MESH]
  • |Adult[MESH]
  • |Aged[MESH]
  • |Aged, 80 and over[MESH]
  • |Anticonvulsants/therapeutic use[MESH]
  • |COVID-19/*complications/*psychology[MESH]
  • |Cross-Sectional Studies[MESH]
  • |Epilepsy/complications/*psychology/*therapy[MESH]
  • |Female[MESH]
  • |Humans[MESH]
  • |Male[MESH]
  • |Middle Aged[MESH]
  • |New York City[MESH]
  • |Patient Satisfaction[MESH]
  • |Remote Consultation[MESH]
  • |Stress, Psychological/*complications/*psychology[MESH]
  • |Surveys and Questionnaires[MESH]
  • |Treatment Outcome[MESH]


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