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10.1186/s13023-020-01513-6 http://scihub22266oqcxt.onion/10.1186/s13023-020-01513-6 32867855!7456755!32867855     free     free     free Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534 Deprecated: Implicit conversion from float 229.6 to int loses precision in C:\Inetpub\vhosts\kidney.de\httpdocs\pget.php on line 534       Orphanet+J+Rare+Dis 2020 ; 15 (1): 228 Nephropedia Template TP {{tp|p=32867855|t=2020. Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic |pdf=|usr=}}{{32867855}} gab.com Text Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic JO: Orphanet J Rare Dis http://www.kidney.de/pget.php?&tw=1&pmid=32867855 #FOAvip During the COVID-19 outbreak, the European Reference Network on Rare Bone Diseases (ERN BOND) coordination team and Italian rare bone diseases healthcare professionals created the "COVID-19 Helpline for Rare Bone Diseases" in an attempt to provide high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals. The present position statement describes the key characteristics of the Helpline initiative, along with the main aspects and topics that recurrently emerged as central for rare bone diseases patients and professionals. The main topics highlighted are general recommendations, pulmonary complications, drug treatment, trauma, pregnancy, children and elderly people, and patient associations role. The successful experience of the "COVID-19 Helpline for Rare Bone Diseases" launched in Italy could serve as a primer of gold-standard remote care for rare bone diseases for the other European countries and globally. Furthermore, similar COVID-19 helplines could be considered and applied for other rare diseases in order to implement remote patients' care. Twit Text FOAVip Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic ????Orphanet J Rare Dis http://www.kidney.de/pget.php?&tw=1&pmid=32867855 #FOAvip Twit Text # Free Paper on # # # # # LINK http://www.kidney.de/pget.php?&tw=1&pmid=32867855 #FOAvip English Wikipedia <ref>{{Cite pmid|32867855}}</ref> Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic #MMPMID32867855 Brizola E; Adami G; Baroncelli GI; Bedeschi MF; Berardi P; Boero S; Brandi ML; Casareto L; Castagnola E; Fraschini P; Gatti D; Giannini S; Gonfiantini MV; Landoni V; Magrelli A; Mantovani G; Michelis MB; Nasto LA; Panzeri L; Pianigiani E; Scopinaro A; Trespidi L; Vianello A; Zampino G; Sangiorgi L Orphanet J Rare Dis 2020[Aug]; 15 (1): 228 PMID32867855show ga During the COVID-19 outbreak, the European Reference Network on Rare Bone Diseases (ERN BOND) coordination team and Italian rare bone diseases healthcare professionals created the "COVID-19 Helpline for Rare Bone Diseases" in an attempt to provide high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals. The present position statement describes the key characteristics of the Helpline initiative, along with the main aspects and topics that recurrently emerged as central for rare bone diseases patients and professionals. The main topics highlighted are general recommendations, pulmonary complications, drug treatment, trauma, pregnancy, children and elderly people, and patient associations role. The successful experience of the "COVID-19 Helpline for Rare Bone Diseases" launched in Italy could serve as a primer of gold-standard remote care for rare bone diseases for the other European countries and globally. Furthermore, similar COVID-19 helplines could be considered and applied for other rare diseases in order to implement remote patients' care. |*Betacoronavirus[MESH] |Aged[MESH] |Algorithms[MESH] |Bone Diseases/*complications/therapy[MESH] |COVID-19[MESH] |Child[MESH] |Coronavirus Infections/*complications/prevention & control/therapy[MESH] |Female[MESH] |Humans[MESH] |Pandemics/prevention & control[MESH] |Pneumonia, Viral/*complications/prevention & control/therapy[MESH] |Pregnancy[MESH] |Rare Diseases/*complications/therapy[MESH] |Remote Consultation/*standards[MESH] |SARS-CoV-2[MESH]Providing high-quality care remotely to patients with rare bone diseas(epmc).pdf DeepDyve Pubget Overpricing