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10.1177/0269216320950089

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32799739!7431876!32799739
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suck abstract from ncbi


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pmid32799739      Palliat+Med 2020 ; 34 (9): 1202-1219
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  • The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study #MMPMID32799739
  • Ekberg K; Weinglass L; Ekberg S; Danby S; Herbert A
  • Palliat Med 2020[Oct]; 34 (9): 1202-1219 PMID32799739show ga
  • BACKGROUND: The importance of caring for children with complex and serious conditions means that paediatric palliative care must continue during pandemics. The recent pandemic of Coronavirus Disease 2019 (COVID-19) provides a natural experiment to study health communication during pandemic times. However, it is unknown how communication within consultations might change during pandemics. AIM: This study, a sub-study of a larger project, aimed to examine real-world instances of communication in paediatric palliative care consultations prior to and during the COVID-19 pandemic to understand how clinicians and families talk about the pandemic. DESIGN: Paediatric palliative care consultations prior to, during, and immediately following the initial peak of COVID-19 cases in Australia were video recorded and analysed using Conversation Analysis methods. SETTING/PARTICIPANTS: Twenty-five paediatric palliative care consultations (including face-to-face outpatient, telehealth outpatient and inpatient consultations) were video recorded within a public children's hospital in Australia. Participants included 14 health professionals, 15 child patients, 23 adult family members and 5 child siblings. RESULTS: There was a pervasive relevance of both serious and non-serious talk about COVID-19 within the consultations recorded during the pandemic. Topics typical of a standard paediatric palliative care consultation often led to discussion of the pandemic. Clinicians (55%) and parents (45%) initiated talk about the pandemic. CONCLUSIONS: Clinicians should not be surprised by the pervasiveness of COVID-19 or other pandemic talk within standard paediatric palliative care consultations. This awareness will enable clinicians to flexibly address family needs and concerns about pandemic-related matters that may impact health and wellbeing.
  • |Adolescent[MESH]
  • |Australia[MESH]
  • |COVID-19[MESH]
  • |Child[MESH]
  • |Child, Preschool[MESH]
  • |Coronavirus Infections/*nursing[MESH]
  • |Female[MESH]
  • |Hospice and Palliative Care Nursing/*organization & administration/*statistics & numerical data[MESH]
  • |Humans[MESH]
  • |Infant[MESH]
  • |Infant, Newborn[MESH]
  • |Male[MESH]
  • |Pandemics/*statistics & numerical data[MESH]
  • |Pediatric Nursing/*organization & administration/statistics & numerical data[MESH]
  • |Pneumonia, Viral/*nursing[MESH]
  • |Remote Consultation/*statistics & numerical data[MESH]


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