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2016 ; 8
(ä): 621-627
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The Danish Nephrology Registry
#MMPMID27843345
Heaf J
Clin Epidemiol
2016[]; 8
(ä): 621-627
PMID27843345
show ga
AIM OF DATABASE: The Danish Nephrology Registry's (DNR) primary function is to
support the Danish public health authorities' quality control program for
patients with end-stage renal disease in order to improve patient care. DNR also
supplies epidemiological data to several international organizations and supports
epidemiological and clinical research. STUDY POPULATION: The study population
included patients treated with dialysis or transplantation in Denmark from
January 1, 1990 to January 1, 2016, with retrospective data since 1964. MAIN
VARIABLES: DNR registers patient data (eg, age, sex, renal diagnosis, and
comorbidity), predialysis specialist treatment, details of eight dialysis
modalities (three hemodialysis and five peritoneal dialysis), all transplantation
courses, dialysis access at first dialysis, treatment complications, and
biochemical variables. The database is complete (<1% missing data). Patients are
followed until death or emigration. DESCRIPTIVE DATA: DNR now contains 18,120
patients, and an average of 678 is added annually. Data for each transplantation
course include donor details, tissue type, time to onset of graft function, and
cause of graft loss. Registered complications include peritonitis in peritoneal
dialysis patients, causes of peritoneal dialysis technique failure, and
transplant rejections. Fifteen biochemical variables are registered, mainly
describing anemia control, mineral and bone disease, nutritional and uremia
status. Date and cause of death are also included. Six quality indicators are
published annually, and have been associated with improvements in patient
results, eg, a reduction in dialysis patient mortality, improved graft survival,
and earlier referral to specialist care. Approximately, ten articles, mainly
epidemiological, are published each year. CONCLUSION: DNR contains a complete
description of end-stage renal disease patients in Denmark, their treatment, and
prognosis. The stated aims are fulfilled.