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2017 ; 19
(5
): e178
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Pharma Websites and "Professionals-Only" Information: The Implications for
Patient Trust and Autonomy
#MMPMID28539303
Graber MA
; Hershkop E
; Graber RI
J Med Internet Res
2017[May]; 19
(5
): e178
PMID28539303
show ga
BACKGROUND: Access to information is critical to a patient's valid exercise of
autonomy. One increasingly important source of medical information is the
Internet. Individuals often turn to drug company ("pharma") websites to look for
drug information. OBJECTIVE: The objective of this study was to determine whether
there is information on pharma websites that is embargoed: Is there information
that is hidden from the patient unless she attests to being a health care
provider? We discuss the implications of our findings for health care ethics.
METHODS: We reviewed a convenience sample of 40 pharma websites for
"professionals-only" areas and determined whether access to those areas was
restricted, requiring attestation that the user is a health care professional in
the United States. RESULTS: Of the 40 websites reviewed, 38 had information that
was labeled for health care professionals-only. Of these, 24 required the user to
certify their status as a health care provider before they were able to access
this "hidden" information. CONCLUSIONS: Many pharma websites include information
in a "professionals-only" section. Of these, the majority require attestation
that the user is a health care professional before they can access the
information. This leaves patients with two bad choices: (1) not accessing the
information or (2) lying about being a health care professional. Both of these
outcomes are unacceptable. In the first instance, the patient's access to
information is limited, potentially impairing their health and their ability to
make reasonable and well-informed decisions. In the second instance, they may be
induced to lie in a medical setting. "Teaching" patients to lie may have adverse
consequences for the provider-patient relationship.