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2020 ; 111
(4
): 454-457
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Pandemics, privacy, and public health research
#MMPMID32592023
Bernier A
; Knoppers BM
Can J Public Health
2020[Aug]; 111
(4
): 454-457
PMID32592023
show ga
Sharing data expediently for pandemic response purposes exposes healthcare
providers in Canada to significant regulatory uncertainty. Duplicative and
contradictory ethical and legal duties flowing from overlapping sources can
stifle flows of medical data among clinicians, researchers, and institutions.
Authorities should support caregivers and accelerate research by providing clear
guidance to the health sector. Institutions should foster robust data stewardship
and standardize their practices to those recognized among the international
health informatics community. Reform is critical to ensuring Canadian healthcare
providers can deliver efficient health responses that are integrated with
dispersed and disparate national and international approaches.