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2017 ; 4
(ä): 2054358117703070
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Opportunities for Engaging Patients in Kidney Research
#MMPMID28491336
Demian MN
; Lam NN
; Mac-Way F
; Sapir-Pichhadze R
; Fernandez N
Can J Kidney Health Dis
2017[]; 4
(ä): 2054358117703070
PMID28491336
show ga
PURPOSE: The purpose of this review is to provide a summary of the rationale for
engaging patients in research as well as to review the established and envisioned
advantages and strategies for patient-researcher partnerships. The authors of
this article, which include a patient and 4 researchers in kidney disease,
discuss the expected benefits and opportunities for patient engagement in their
respective research programs. The 4 research programs span the spectrum of kidney
disease and focus on enhancing bone health, increasing living donor kidney
transplants, improving medication adherence, and preventing kidney transplant
rejection. SOURCES OF INFORMATION: The sources of information for this review
include published studies on the topics of patient engagement and the 4 research
programs of the new investigators. KEY FINDINGS: (1) Patient, health care
provider, and researcher partnerships can contribute useful insights capable of
enhancing research in kidney disease. (2) Regardless of the research program,
there are various strategies and opportunities for engagement of patients with
lived experience across the various stages of research in kidney disease. (3)
Envisioned advantages of patient-researcher partnerships include: targeting
patient-identified research priorities, integrating patients' experiential
knowledge, improving study design and feasibility through patient-researcher
input, facilitating dissemination of research findings to other patients,
effectively responding to patient concerns about studies, and inspiring
researchers to conduct their research. LIMITATIONS: The limitations of the
current review include the relative scarcity of literature on patient engagement
within the field of kidney disease. IMPLICATIONS: The findings of the current
review suggest that it will be important for future studies to identify optimal
strategies for patient engagement in setting research priorities, study design,
participant recruitment, execution of research projects, and knowledge
dissemination and translation.