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lüll Surviving colorectal cancer: long-term, persistent ostomy-specific concerns and adaptations Sun V; Grant M; McMullen CK; Altschuler A; Mohler MJ; Hornbrook MC; Herrinton LJ; Baldwin CM; Krouse RSJ Wound Ostomy Continence Nurs 2013[Jan]; 40 (1): 61-72PURPOSE: The purpose of this article was to describe persistent ostomy-specific concerns and adaptations in long-term (>5 years) colorectal cancer survivors with ostomies. SUBJECTS AND SETTINGS: Thirty-three colorectal cancer survivors who participated in 8 gender- and health-related quality of life stratified focus groups and 130 colorectal cancer survivors who provided written comments to 2 open-ended questions on ostomy location and pouch problems participated in the study. Data were collected on health maintenance organization members in Oregon, southwestern Washington, and northern California. METHODS: Qualitative data were analyzed for the 8 focus groups and written comments from 2 open-ended survey questions. Discussions from the focu s groups were recorded, transcribed, and analyzed using content analysis. Written content from the open-ended questions was derived from a mailed questionnaire on health-related quality of life in survivors with ostomies and analyzed using content analysis. RESULTS: Discussions related to persistent ostomy-related issues more than 5 years after formation were common. Persistent ostomy-related issues were focused on clothing restrictions and adaptations, dietary concerns, issues related to ostomy equipment and self-care, and the constant need to find solutions to adjust and readjust to living with an ostomy. CONCLUSIONS: Ostomy-specific concerns persist 5 years and more for long-term colorectal cancer survivors after initial ostomy formation. Adaptations tend to be individualized and based on trial and error. Findings underscore the need to develop long-term support mechanisms that survivors can access to promote better coping and adjustment to living with an ostomy.|*Colorectal Neoplasms[MESH]|*Ostomy[MESH]|*Quality of Life[MESH]|*Survivors[MESH]|Adaptation, Psychological[MESH]|Aged[MESH]|Body Image[MESH]|Female[MESH]|Focus Groups[MESH]|Humans[MESH]|Life Style[MESH]|Male[MESH]|Middle Aged[MESH]|Self Care[MESH] |