Warning: Undefined variable $zfal in C:\Inetpub\vhosts\kidney.de\httpdocs\mlpefetch.php on line 525
Deprecated: str_replace(): Passing null to parameter #3 ($subject) of type array|string is deprecated in C:\Inetpub\vhosts\kidney.de\httpdocs\mlpefetch.php on line 525
Warning: Undefined variable $sterm in C:\Inetpub\vhosts\kidney.de\httpdocs\mlpefetch.php on line 530
 free
Warning: Undefined variable $sterm in C:\Inetpub\vhosts\kidney.de\httpdocs\mlpefetch.php on line 531
 free
 free
 
English Wikipedia
Nephropedia Template TP (
Twit Text
DeepDyve
Pubget Overpricing |  
lüll
Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations Borry P; Evers-Kiebooms G; Cornel MC; Clarke A; Dierickx KEur J Hum Genet 2009[Jun]; 17 (6): 711-9Although various guidelines and position papers have discussed, in the past, the ethical aspects of genetic testing in asymptomatic minors, the European Society of Human Genetics had not earlier endorsed any set of guidelines exclusively focused on this issue. This paper has served as a background document in preparation of the development of the policy recommendations of the Public and Professional Committee of the European Society of Human Genetics. This background paper first discusses some general considerations with regard to the provision of genetic tests to minors. It discusses the concept of best interests, participation of minors in health-care decisions, parents' responsibilities to share genetic information, the role of clinical genetics and the health-care system in communication within the family. Second, it discusses, respectively, the presymptomatic and predictive genetic testing for adult-onset disorders, childhood-onset disorders and carrier testing.|*Health Planning Guidelines[MESH]|*Minors[MESH]|Adolescent[MESH]|Adult[MESH]|Child[MESH]|Ethics, Medical[MESH]|Genetic Counseling[MESH]|Genetic Testing/*ethics/standards[MESH]|Genetics, Medical[MESH]|Health Policy[MESH]|Humans[MESH]|Societies, Medical[MESH]|United Kingdom[MESH] |
