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Gastrostomy placement in paediatric patients with neuromuscular disorders: indications and outcome Ramelli GP; Aloysius A; King C; Davis T; Muntoni FDev Med Child Neurol 2007[May]; 49 (5): 367-71Studies of children with neurodevelopmental disorders have shown that receiving nutrition through a gastrostomy can improve clinical outcomes and quality of life. However, there is little information on gastrostomy and its effect in patients with neuromuscular disorders. A retrospective casenote review of all patients with a gastrostomy, followed-up at the Hammersmith Hospital, London, was undertaken to assess the indications for, and outcomes of, gastrostomy placement. Notes for 32 patients (17 males, 15 females) were reviewed (age range 32mo-31y; median age 12y 5mo). We found three main groups of diagnoses: congenital muscular dystrophy (n=15), structural congenital myopathies (n=11), and other neuromuscular disorders (n=6). Two main patterns of feeding problems were identified before gastrostomy: swallowing difficulties, and nutrition and growth problems. The follow-up period after gastrostomy was from 12 months to 19 years (mean 5y). Weight faltering was reversed in 17 out of 22 patients, and height faltering in 9 out of 14, where data were available. Twenty-six patients had a reduced frequency of chest infections. No significant complication of gastrostomy placement was documented. Twenty-eight patients or their families were happy with the results of the gastrostomy. Gastrostomy seems to have a substantial positive impact in patients with neuromuscular disease and feeding difficulties.|*Enteral Nutrition[MESH]|*Gastrostomy[MESH]|Adolescent[MESH]|Child[MESH]|Child, Preschool[MESH]|Feeding and Eating Disorders of Childhood/therapy[MESH]|Female[MESH]|Follow-Up Studies[MESH]|Humans[MESH]|Infant[MESH]|Male[MESH]|Neuromuscular Diseases/*therapy[MESH]|Retrospective Studies[MESH]|Treatment Outcome[MESH] |
